9.21.08

john woke up last night with a terrible burning in his leg that lasted on and off all night. he was pretty exhausted due to the day's events (my grandmother's funeral) so he really needed the rest and this interfered. he slept this morning until about 11am. that's unheard of for him.

his body had a hard time adjusting when the doc deceased his steroids down to 5mg. this time, though, the decrease down to 2.5 seems to be an even way more complicated adjustment for his body to make. it's not going so well.

yesterday at the funeral i noticed that john's responses to people have changed. normally, when they ask him how he is, he minimizes how badly he's feeling and smiles and says 'ok', or 'not too bad considering', or something along those lines. yesterday, however, about three different people asked him about his health and each time his response was different than in the past. this time he just sort of looked at them. then he'd sort of make this face like, 'i don't know how to answer that', and then he'd sort of half smile. he never really did answer much. that worries me a little.
k