Tuesday, May 19, 2009

long time no post

i know. sorry. a lot has happened.

the house is coming along nicely. it is starting to look like something someone would actually buy.

the kids are ok but noah had a 2 day bout in the hospital over mother's day weekend with xrays showing swelling in the throat and the ER calling us back and middle of the night tests for liver function and on and on. it was bad. stressful. he is getting better now though the cough and low grade fever have lingered for almost 10 days and this morning he was coughing so hard he threw himself into waves of puking up bile. this is how i spent mother's day and he spent his birthday. poor boy. at least he is getting better now and KNOCK ON WOOD the other kids don't show any signs of illness.

eating is going well. mostly. still can't seem to figure out a balance. our bodies really benefitted from the liquid detox and now that we're back on regular food we don't feel so hot. but seriously who can stay on liquid kale forever? it's a good problem to have though so i'm not complaining.

here's what i am complaining about, ... john's vasculitis symptoms are returning. it's been a pretty bad week of swelling in the blood clot leg to the point that he has had to wear the granny stocking quite a bit, pain in the extremities and joints, tingeling in the feet and legs, feelings of restricted circulation, and actual red vasculitis spots where the healthy blood vessel has clearly been attacked by the confused immune system and ruptured under the skin, pooling the blood.

and so it goes in the life of a family dealing with chronic illness. i'm not sure i have much more to say about this at this point. it is a sort of mental shut down for me. i cannot even imagine the feelings john must be having. i have identified it as a mild post traumatic stress we are experiencing after 2008, combined with this anticipatory stress of possible relapse.
it is hard. please pray for continued strength and healing for john and stress reduction for the kids. enough is enough.
thanks,
k

2 comments:

Bevin said...

Geez Kim. I am sorry. I will keep you and your family in my thoughts.

Anonymous said...

so hard. praying.

t